Our Miracle - Ryker's Journey with Heterotaxy

Our Miracle - Ryker's Journey with Heterotaxy

Monday, December 3, 2012

Update

Update from Rachel today 12/3/12 - I have been a little emotional this morning, knowing that today marks the start of a new week....a week that I HOPE with all my heart will be Amazing & that we will get lots of Fantastic news!! As many of you know- At some point this week (exact day & time is still being discussed) Ryker will be going in for his 6th Heart Cath. This cath is not just any old cath.....This cath is going to be a HUGE
 deciding factor as to whether or not my sweet boy is or is not a candidate for the Glenn procedure. We need this to be good so badly I literally have tears rushing down my cheeks as I write this! If Ryker is unable to get his Glenn procedure (which he WILL be able too!!!) We will head down a long hard road of unknowns...If he IS (which he WILL!!!!) He will hopefully be heading towards his 5th open heart surgery (The Glenn) in the very near future. Either way I am absolutely terrified, but at the exact same time I would be ECSTATIC if we could finally get hm to the procedure that we have waited here in the hospital for months for. Please keep my sweet boy in your thoughts & prayers this week more than normal. I am so scared for what this week holds, but so excited to finally be at this crossroads. I pray with all my heart we are able to go down the path of the Glenn & back on the road to recovery quickly so this baby boy can know the joys of being AT HOME with his Family sooner than later :)


Today now marks the 2nd time in Ryker's almost 9 months of life, to ever go outside!!! What a great day!!!


HE LOVED IT!!! I'll be honest...I cried a little :) He was so in awe of it all, It was PRICELESS!! This little boy deserves the world!!!




We want to thank you all from the bottom of our hearts for all your love and support. Ryker and his family could not be getting through these unimaginable circumstances as well as they are without your love, prayers, c
oncern and support. We have had multiple people inquiring about Christmas for the family. The family’s Christmas wish is that they can continue to provide the best care for Ryker and get him home! To do this they continually need help with their living expenses and the high gas expenses they incur driving to and from the hospital (it cost them approximately $60-$70 in gas & tolls each time they switch off). If you would like to give the family a Christmas gift please consider making a tax deductible donation through Ryker's blog,www.miracleryker.blogspot.com (please notate Ryker Warner in notes to seller). If you prefer to purchase a gift for one of the kids their "wish lists" can be found herehttp://www.amazon.com/registry/wishlist/1V48XDYCAIK16/ref=cm_wl_search_1.
Wristbands are now available and you can learn more about how to order yours here http://miracleryker.blogspot.com/p/miracle-ryker-shirts.html
Thank you so much for you love, prayers, care, concern and support.
We wish you all a joyful holiday season. 


~Ryker's Family

1 comment: