Waiting for meeting with team.

12/8/12 Via Rachel Facebook

It has been a really hard week with all the unknowns. But we are trying our hardest to be as patient as we can & not let our minds & questions get the best of us. It has been a very busy week in the here in the CICU & we truly understand that this is what comes with not only having the top Cardiac surgeon in the country, but also having Ryker being one of thee most complex cases that has walked th...

rough the doors of Boston Children's Hospital. It isn't as easy as just looking at the results & saying "okay this is what we are going to do" There is a ton of thorough study & thought that goes into every step that is taken with our little Ryker. Our plan as of now is to have a meeting at the beginning of the week with Ryker's entire team- Dr. DelNido, Dr. Marx, Ryker's Primary CICU Nurse Sonia, Ryker's Primary CICU Attendings (Head Specialty Doctors), Dr. Salvin, Dr. Vamsi & MANY others that have so much to do with his care plan so that we are able to go over every detail & make sure every question is answered. From there we pray with all our hearts we will get the answers we need so we can continue down this path the way Ryker needs us to & have the strength we need to do whatever it may be that our sweet baby boy needs us to do. Thank you SO much for all the many messages & comments letting us know how much you all care, it means the world to us all!!

Currently Jason, Myself & our sweet girls have been lucky enough to get one of the hospital family housing rooms so we are able to spend the night together as a family & hopefully get our minds off things for a minute. Ryker thankfully has one of our Favorite nurses, Kristen, with him tonight!! She is so amazing with him & he absolutely LOVES his time with her! Then tomorrow morning we will all be able to be together as a Family in Ryker's room in the CICU!! We cannot wait! :)

 

We LOVE our time together!! Cannot WAIT for our big boys to get here!!!