Our Miracle - Ryker's Journey with Heterotaxy

Our Miracle - Ryker's Journey with Heterotaxy

Monday, April 29, 2013

Ryker's Celebration of Life location details......

Please join us in celebrating Ryker's life at the South Mountain Community Church (14216 Bangerter Pkwy Draper, UT 84020) Saturday May 4th at 11 AM. There will be a viewing at the same location Friday May 3rd from 6-9 PM.

We are looking for a Videographer that would be willing to donate time for Ryker's Celebration of Life on Saturday May 4th. We would also love to find someone that can do live streaming of the event for all of those unable to attend. Please contact Jen at 801-554-1170 with any suggestions. Thank you!

Friday, April 26, 2013

Please keep Ryker's amazing family in your prayers.

At exactly 9:40am EST our sweet little Ryker earned his Angel Wings & left this earth to be in the loving arms of our Heavenly Father. We don't know how we will possibly make it through the night tonight without our little Miracle, let alone a lifetime! We love you Ryker, with all our whole hearts & we'll miss you more than words could ever possibly describe!!! ~ Post from Ryker's parents on his facebook page. 

Wednesday, April 24, 2013

Photos outside with Ryker.

I cannot even express how amazing my brother Jason Warner, my sister Rachel Watson Warner, my nieces (Braylee & Addi) and nephews (Ryker, Trett Warner & Jadd Warner) each are. Although not easy at all this family has selflessly moved mountains for their little brother over the past year and although Trett and Jadd were not able to be in these photos they have the same attitudes and love felt through these photos. Love this family and truly blessed that they are part of mine! Thank you once again Myndi Bogdanovich!!!!

Photos :)

And now it's Addi's turn. They both LOVE to help out with their baby brother!! :)
 Braylee giving Ryker his morning nebulizer. Such a sweet sister :)
 Little Buddy trying out his first popsicle :) He LOVED IT!! & I'm sure the cold felt good on his new Molars!
 Sucking on his fingers (& lower lip) after his yummy Popsicle :)
After his little bath earlier today :) He LOVES the hair wash part (if only he could skip the rest of the bathing process:) I think he is screaming for me to rub his cute tiny feetsies (or so my girls would say it) in this pic :)
 Little Dude is OUTSIDE!!!!!! This is only his 3rd time EVER being outside :) & I think he likes it!!
Ryker with his AMAZING Grandma while he's wearing his "I Go Bananas For Grandma" jammies. HE LOVES HIS GRANDMA!!!

Tuesday, April 16, 2013

Fun Facts about Ryker & photos

I have had lots of requests for some fun facts about our little Miracle Ryker, so here we go-

As of today, with Ryker being exactly 13 months, 8 days old, he weighs in at a little under 6KG which is approximately 12lbs. He is wearing 3-6 month clothing, depending on what clothing it is, some items he fits better in 0-3 months. He has lost a lot of weight in the last two months with his last two caths (He used to be almost 15lbs) He is currently right about the size of the average 4 month old baby & LOVES to be cuddled just like them too! He has never worn shoes, so I'm not sure what size he would wear if he did. He has had 2 major haircuts, the first one being about 3 1/2 inches off & this last one about 2 inches (He definitely has no problems in the hair growing department:) His favorite toy is either his mobile or his Sophie Giraffe, especially when his siblings are squeezing it wildly in his face :) He loves staring into the soul of whoever is lucky enough to be holding him & if he is in the mood he will tell you all sorts of stories too & smile the entire time! On April 11th he broke his first tooth....his first tooth being his right upper molar & now this morning he broke his 2nd tooth, his right lower molar (Poor baby boy!) The biggest thing with Ryker is he LOVES company! He loves to be held, snuggled, talked to, bounced & loved to bits & pieces & no matter what he gets all of it ALL THE TIME!! There is always someone fighting over holding him :) ~ Rachel

Thursday, April 11, 2013

A Post from Rachel to Jason

I LOVE the Men in my life SO MUCH!!! Here is my wonderful Husband snuggling our little Miracle Boy last night. I have been so blessed with the Most Amazing Husband! I know there aren't many men out there that will do all the many things he does daily & continue to be so happy to do it! With living in the hospital for a year, dealing with all the many stresses that come with it, only seeing me maybe once a week for a few minutes in passing for almost that entire year, being a Mr. Mom to our girls (a wonderful one at that) doing their hair, laundry & cooking while I was with Ryker, sitting & sleeping bedside with Ryker through all the good & scary times, & now being home together at last & trading shifts with me for sleeping so Ryker can get his Meds & treatments every two hours, along with not just being here to help me, but actually being my partner in it all no matter what goes on. The list could go on & on! Most babies will choose Mommy over Daddy, but not Ryker. He loves us both just the same & no matter how hard his day is going Daddy can hold him just as good as Mommy can, because he truly KNOWS his Daddy & loves him so much!! Thank you Baby for being the most incredible Dad our 5 babies could have ever asked for! We are all so lucky to have you!!! ~ Rachel

Sunday, April 7, 2013


Ryker is still not completely himself, but doing better today! Thank you all for your positive thoughts & prayers! I know they make such a big difference! There is so much that goes into Ryker's complexity, so I wont go into it all, but Ryker was in a lot of pain, where he needed many rescue doses of a few medications to keep him calm enough to not cause more very serious problems for himself. We are still at home & just letting him rest & recover today. I just have to say (even though I know I say it all the time) My baby boy absolutely AMAZES me constantly!! I cannot tell you how many times I have been beyond terrified & have feared that I would never see his Beautiful eyes again.....yet he is still here & is just the sweetest little thing in the whole world!! He fights so hard every single day to be here with us & he does it all with a smile on his face & the sweetest little spirit about him! I am so beyond blessed to be his Mommy!! ~ Rachel

Saturday, April 6, 2013

Please keep Ryker and his family in your prayers.

Rachel posted the following today.....The last 48 hours have been very hard on our sweet little Ryker! Please keep him close to your heart & in your prayers! ♥
Please keep their entire family in your thoughts and prayers. Thank you all for your continued love and support.

Wednesday, April 3, 2013


4/3/13 I love having my happy boy back ~ Rachel

4/2/13 After a VERY rough couple of nights, Ryker is a Happy, Smiley boy again this morning!! He was having a lot of horrible belly pain, that kept him up for almost a full 72 hours straight :( & now, thank goodness, this sweet baby boy is sleeping soundly & snug in my arms. He also is getting MOLARS!?!?? He hasn't even broke his first tooth yet & now he is going to get molars for his first teeth :( Poor Baby! But Ryker likes doing things that are labeled as "RARE" so we will just go with it & hopefully they will break thru soon! For all of you that saw him in his adorable Easter suit, there are lots more pics to come! It was so wonderful having him HOME where he belongs, for Easter!! :) ~ Rachel

3/30/13 Ryker has had a really good week! We've gotten all settled in with being home again & LOVING every single second of it! He is just starting to seem a little more like my happy, bright eyed Ryker, still not smiling constantly like he usually does, but I know he will get back there soon enough! Daddy was finally able to talk me into cutting Ryker's hair last night for the second time (first time was in October) & I am SO happy I did! He looks ADORABLE!! I will post pics soon! Other than that, we have been loving having my Brother Joe & his wife Carol in town & having LOTS of much needed Family time! :)~ Rachel

BEFORE 2nd Hair Cut

AFTER his second haircut!!! Such a handsome Big Boy! :)

3/26/13 - Shannon and Makay visit