Our Miracle - Ryker's Journey with Heterotaxy

Our Miracle - Ryker's Journey with Heterotaxy

Friday, May 17, 2013

Celebration of Life Video

A Post from Rachel -
Absolutely BEAUTIFUL video done by Doug Larson of my sweet baby boy's Celebration of Life. Doug was there with us at the very end when we had asked everyone else to go....the hardest part of that extremely hard day....the moment we had to laid our sweet angel baby to rest. At first I didn't think I would be able to watch it, with it all just being still too raw, but I am so glad I did. It is so beautiful! Such a wonderful tribute to have for my sweet baby boy! Thank you so much Doug!!

A post from the videographers page-
"I just finished editing this memorial film for Ryker Warner, a 14 month old boy who's funeral was almost two weeks ago. I was amazed at how many people around the world were following him on facebook hoping he would beat the odds with the disease he had. ABC4 even streamed the funeral live on their website. I was so glad I could be a part of his funeral and to see the love his family had for him They literally gave up everything in hopes of finding a cure for him. To lose a child would be so devastating and to be with the family as they laid the casket in the ground...... Serious time for reflection on what is the most important things in our lives. Here is the film, feel free to share it." - Doug Larson


Thursday, May 9, 2013


May 5th - Yesterday was such an incredibly hard & emotional day, beyond any possible words of expression....yet it was an absolutely incredible as well as spiritual experience! The outpouring of love & compassion that was given to our Family from SO MANY was unbelievable! Our baby's absolutely beautiful viewing, his entire service, down to every single word said from every last speaker, the incredible set-up that all turned out exactly how we wanted, the exit that was SO powerful, with a full police & motorcycle escort, the beautiful graveside service that went so perfectly, every last bit of all of it.... It was ALL phenomenal!! I want to say a huge Thank you to all the MANY people that had a part to do with such an life changing day for my Family! Thank you all for making such a hard day a little more bearable & for making my little Miracle baby's legacy that much more incredible! We love you all so much!!  ~ Rachel

May 2nd  - I have had to pull together my thoughts & pray the lord will help me put into words the feelings I am feeling so many times in the past, but absolutely nothing compared to this. My Beautiful Baby Boy's Obituary......By far the hardest thing I have ever had to write!

Wednesday, May 1, 2013

A post update from Rachel....

Today is the first day I have been able to bring myself to get onto my sweet Ryker's page & read through all the many comments of true love for my beautiful boy. I sit here completely astounded by the incredible amount of real & true, outpouring of love for my baby! It leaves me sobbing! I have always known how special our little Miracle Boy is & that he has touched & changed so many lives....but I had no idea how many lives & how deeply he impacted them. I cannot even fathom the idea of continuing on our lives without our perfect little baby boy! I keep waking up hoping & praying it was a terrible dream & I will look down to him snug in my arms, then I can kiss his sweet head & he can look at me once again with those big beautiful blue eyes that just make my soul dance! We miss him more than words could ever truly express! I don't know how this can ever get easier or less painful, but it brings me so much peace to know that he will never again feel any kind of pain! My heart is left shattered & broken, but his is finally whole & beautiful like we have always dreamed it should be! My sweet Addi continues to tell me- "You don't need to cry Mommy, he is still here with us, we just can't see him! Ryker is an angel now & I can feel him in heart!" My sweet little Addi's innocence & her & Braylee's extremely close connection that they still have with their baby brother, is what is going to help me to get through this extremely hard time & I am thanking God everyday that I still have them!

Thank you all for taking time to let us know how much you love our boy, it means more to us that you could ever understand! ~ Rachel 

Just watched as the flight team boarded my sweet boy onto the plane in the tiniest little box.....:( I did not think this would be the way we would take him to Utah for his very first time. I have been asked many times throughout the last year if we would ever move back to Utah & my response was always- "I really pray we don't" Because I knew this would be the only way we would be going back...if we lost him. We knew Ryker would forever need the care of the wonderful team at Boston Children's Hospital & wanted to stay in the exact place that he needed to be. So, as much as we are very excited to get back to our amazing & selfless big boys in Utah...this is absolutely gut wrenching!! Please pray for my family to survive this all. ~ Rachel