Our Miracle - Ryker's Journey with Heterotaxy

Our Miracle - Ryker's Journey with Heterotaxy

Wednesday, August 8, 2012

Update...Surgery tomorrow

*RYKER UPDATE*
As you all know Ryker has had numerous problems with belly pain in the past. Every test they have ever given him on his GI tract has come back negative for any malrotation or blockages & so we have always felt so blessed to have our baby be one of the few Heterotaxy babies without malrotation. Ryker had a CT Scan of his belly last night. That CT Scan came back a little suspicious &
so they chose to take a closer look this morning. What we have found is that Ryker has something called Intermittent Volvulous of his GI Tract, meaning that his digestive tract will randomly, for no reason at all turn on itself causing a blockage & putting my sweet baby extreme tummy pain. So in other words he does in fact have Malrotation :( As hard as this is for us to swallow, it is good to finally have an answer to so many questions about his tummy pain that went unanswered from the past & it makes perfect sense as to why he can eat perfectly for weeks & then suddenly he is screaming in horrible pain. This is extremely hard for me to put this all into words...But Ryker is scheduled for a Ladds Procedure at noon tomorrow. This is a surgery on his GI Tract to hopefully correct this problem & place a G-Tube (a more permanent form of a feeding tube) so that Ryker can be back to eating again soon. So- Please, please pray for our beautiful boy as he goes back the Operating Room for the 5th time tomorrow

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