Update+Pics-8/1/12

Only a little over 2 weeks after our July 14th VERY SCARY night, Ryker is doing really good & impressing everyone with his strength! After all he went through everyone here in the CICU wondered weather or not he would pull out of it & not only has he pulled out of it he has people regularly coming to his room just to get a look at how well he really is doing. He is astounding everyone! :) Our two absolute FAVORITE nurses Sonya & Kristen have decided to take month long vacations at the same time & wont be back till the beginning of September :( So we are going to make sure that Ryker still gets the best care possible during this hard month without them (happy for them, but sad for us) Can't wait for them both to be back!

He is still NPO (not eating) so he is only getting nutrition through his PICC line but they have upped it as much as they can with lipids (IV fats) & all so now they are calling it IV rocket fuel :) Ryker weighed in today at 4.08KG!!!!!! I can't even begin to tell you how happy this makes me! This means he is almost 9lbs!!! YAHOO BABY BOY!!! One more pound to go & he will be in the "safe zone" for the Glenn (his next surgery) Because his Glenn is now going to have added procedures (making it much more complicated) I'm sure they will still let him grow bigger than 10lbs if he is able, just to be as safe about his next surgery as possible. So they are planning on keeping him as comfortable & happy as they can so he can grow & burn as little calories as possible so we can get him fat! ;) They put his NJ tube (intestinal feeding tube) back in yesterday in hopes of starting feeds again soon, but that upset him so much (I can't say I blame him, I wouldn't want anyone putting stuff down my nose either!) that they are going to give him at least 24 hours to settle before trying to feed.

Dr. Marx did an echo last Thursday & said his heart function has improved some :) so the plan was to do an echo tomorrow (Wednesday) to check it out again, However- Ryker decided to throw a little curve ball on Sunday & he went into A-Flutter with his G'ma Watson here. That morning he was a little more fussy than normal & his work of breathing had gone up quite a bit so they were worried that his PVS might be causing more problems so they echoed him early to make sure everything was okay. (Me in a panic at home with my girls, getting ready to head back to the hospital feeling there was something wrong) So, they did a sedated echo & it came back that his PVS looked the same as it did after his cath (Thank you God!) & his heart function had improved some, BUT that he was in A-Flutter!! Thank goodness the EP Team (Electro Physiologists) were able to pace him out of it by changing some settings on his pacemaker. I can't even tell you grateful I was that he didn't have to have the defibrillator again! So, after all that craziness he had a really good day & night for Grandma. Watching the Olympics with her & all! Grandma Watson told me that it was the cutest thing watching him wave his arms & kick his legs while he was watching it :) & I have had numerous nurses that said it was so cute that they had to have others come into his room to see! So it was a great night with Grandma!

So from here they are planning on echoing him about once a week to keep close tabs on his heart & we are still just praying he has lots more uneventful days that have lots of happiness & comfort for my sweet boy so he can grow big & strong!! :)