Our Miracle - Ryker's Journey with Heterotaxy

Our Miracle - Ryker's Journey with Heterotaxy

Tuesday, May 29, 2012

Update & upcoming events

May 25th - "Miracle Ryker" status update - Just finished with morning rounds and I am so EXCITED---After almost 5 weeks of Ryker being on both Vanco & Zosen (antibiotics) plus his regular daily dose of amoxacillin They finally decided to stop them & start probiotics with his FEEDS that will be starting in about an hour!!!!!!! Wahoooo!!! He hasn't been able to really eat good since long before his last surgery & I have always felt like the antibiotics were hurting his tummy on top of everything else & I have literally begged for probiotics till they all thought I was crazy! :) Just keeping my fingers crossed that he tolerates the feeds well so we can fatten up this cute tiny baby!!
May 26th - "Miracle Ryker" status update - Because of Ryker's complex anatomy & his stomach being on the wrong side it was a process to get his feeding tube to NJ (into his intestines) but finally after 10+ tries & 3 x-rays it was placed as of about 9pm last night. :) Now Ryker has been on his feeds for a little over 12hrs at 2cc's per hour (they are starting extremely slow) & has tolerated it well, so they just upped it to 4cc's per hour a few minutes ago. Please pray he continues to tolerate it well with no pain!!
May 28th - "Miracle Ryker" status updateRyker had a good night! He is up to 10cc per hour on his feeds & doing great with that. They would like to get him up to full feeds by tomorrow (13cc per hour) & once he has tolerated full feeds for a couple days they will consider pulling his NJ tube to NG (in his stomach) & from there he may be able to finally have a bottle :) :) :) Poor little guy has had an empty stomach for about 4 weeks now, I can't even imagine the hunger pains he has. Hopefully the tummy feeds will come soon & he will tolerate them well!!

As you can tell from the status updates above Ryker has been doing GREAT! and we are all so thankful for all the positive prayers, energy & support. We are blessed and thankful for the amazing family and friends that surround Ryker, Jason, Rachel, Trett, Jadd, Braylee and Addisyn.

Jason and his family continue to deal with overwhelming expenses during this time, any help is very much appreciated. The money we continue to raise it being used for many ongoing expenses including, the loan payment for the jet (Ryker was flown via air ambulance to Boston), current living expenses (food and hotel room), moving expenses, transportation expenses and many other expenses related to the sudden unexpected cross country move and fight for Ryker's life.

EVENTS & HOW YOU CAN HELP
- Make a tax deductible donation through this blog to Children and the Earth (please notate for Ryker).
-If you are in the Salt Lake City area there will be a Miracle Ryker benefit garage sale June 2nd at 8AM Address:  3818 W Alna Cove (12300 S) Riverton
-Attend the neighborhood party for Miracle Ryker June 9th at 5PM Address : 14165 South 2600 West Bluffdale
- Sign up for the Brain Wave 5K event (please select "Team Miracle Ryker & Easton". https://events.regtix.com/childrenandtheearth.htm

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