Ryker is out of his heart "flutter" They had to shock him with the defibrillator paddles only one time to get him out of it, Thank you God!! I pray that we NEVER EVER have to go through that again!!! He is fully sedated now & they just did a thorough echo of his heart. We spoke with Dr. Marx & he said Ryker's heart looks extraordinary! :) :) This is such great news to hear especially after having ...the day we have had. He also said that his AV valve has little to no leak & his PA band is right at the correct tightness. :) Good job Dr. DelNido! So as far as Ryker's heart is concerned everything is as perfect as it can be right now! I cannot even tell you how wonderful this is to hear! Now we just have to find out what is causing his pain & now the heart flutter! Thank you for all your many prayers! Please keep them coming!!! :)
UPDATE PLEASE PRAY for Ryker..... Rachel just a text that as soon as she did the post saying Ryker is doing good things happened. The pacemaker team was just there adjusting his pacemaker and it sent his heart into something called "flutter" which is like an extreme SVT of the heart atria. The only way to pull him out of it is to sedate him, intubate him and do defibrillator paddles (the electric pulse paddles) on him :( PLEASE PLEASE PLEASE PRAY FOR RYKERRyker had a pretty crazy day yesterday filled with a few "code red" episoids where he completely stopped breathing. Today he seems to be doing better. Rachel posted the following update on Facebook this morning.....Ryker had a much better night last night. No more "code red" spells (praying it stays that way!!) As long as he gets consoled instantly when he is upset he doesn't get into those not breathing spells. He still seems to be pretty uneasy & uncomfortable at times so I am trying my hardest to get them to allow him to eat today in hopes that hunger pains is part of the reason why he gets so sad at times :( He is also still on High Flow to help him breath, but this forces a lot of air down into his belly that we think is causing extreme gas....So between the no food & lots of gas he gets really upset where he cries so hard he forgets to breath. (because he is still getting used to the breathing on his own part) Please pray that he will have a better day today & that he will be able to get more comfortable so he can get some rest!
She also posted the photo below saying this is Ryker's current favorite place to be and helps him stay calm.
Thank you for all the love, prayers and support. We cannot wait for Ryker & his family to have many calm days in a row. :)
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