Our Miracle - Ryker's Journey with Heterotaxy

Our Miracle - Ryker's Journey with Heterotaxy

Friday, April 27, 2012

Update from Rachel ~


He is having a really good day! His B.U.N levels have gone down a ton meaning that his kidneys are doing way better! The cultures have all came up negative for infection however Dr. Del Nido feels like there was something there that is just not showing up because of how bad he had gotten the other day, so he has decided to keep him on the antibiotics for 7 days. Hopefully his kidneys will do well through that! 

During this week with all that has gone on with Ryker he has had to get a lot of blood drawn sometimes up to 3 times a day to do labs to see where his levels are at. Therefore they had to give him a blood transfusion last night & he has looked amazing since! His skin is nice & pink again :)  

He is doing so good with is feeds. He is taking 20 cc's almost every feeding & then they put the remainder of the feed down his feeding tube. He gets worn out after drinking about 20 cc's so we have to continue to work on that so he can build his endurance for eating all on his own again. He is still on plain breast milk & they have come to realize that the additives that they were fortifying the breast milk with were what his tummy was having a hard time with. The Nurse practitioner spoke to me today about my breast milk cals being at 28 & she is so excited that he wont have to get back onto any additives!

Monday and Tuesday were pretty rough for Ryker. In fact they started talking about sending him back to CICU but like Dr. Marx said "Ryker heard that & proved to us that he wanted to be here (on the floor)". 


He is doing awesome! I am so proud of my sweet tough boy!! I am amazed at how one day he can be struggling a little & then he pulls himself right out of it every time! He is my little hero!!



And to leave you with a beautiful photo of our little miracle. 

1 comment:

  1. I LOVE this picture...it may be my new favorite! :) What a tough little man!

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