Our Miracle - Ryker's Journey with Heterotaxy

Our Miracle - Ryker's Journey with Heterotaxy

Monday, April 23, 2012

Moved to the floor


                                             Ryker is doing great! He has been moved from CICU and onto the floor. This means that Rachel gets to stay by his side 24/7, sleep in his room and no longer has to leave him to pump. Ryker's oxygen levels are doing great, he is staying in the 85-95 range. He is now breathing 100% on his own. He has been more fussy than they would like and they are in the process of ruling out dairy intolerance. This means no dairy for Rachel, Ryker or in the added calorie's they add to the breast milk he gets. His kidney function is still not where they would like it to be so they continue to adjust his medication to see if they will improve. Ryker has what is called Heterozygous Factor V Lieden. This is genetic in our (Jason's family). This means that his blood is at higher risk for clotting than the average person.

Photo below is of Ryker drinking his first bottle after surgery.

If you missed the benefit dinner and would like to hear the speech Jason wrote and had his friend Jay read you can find it here http://vimeo.com/40886609

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