Our Miracle - Ryker's Journey with Heterotaxy

Our Miracle - Ryker's Journey with Heterotaxy

Monday, March 26, 2012

Ryker Update

Hello Everyone,

As I understand from others who have been through a similar experience we are going to be experiencing many ups and downs along Ryker's recovery. I hear to expect things to be going not so good one minute and then the next a miraculous recovery. It is understandable when you start to learn more about what the procedures entail and how hard this is on a body let alone a 2 week old baby.

An update for today is that they closed the chest incision. The surgical staff told Jason and Rachel that they did not think they would be able to close it today. They were told this before Dr. Pedro del Nido showed up. Once he showed up he said that they would get it closed very soon and it was closed up with in a few hours after that. I hear what Dr. Del Nido says is what goes :). What this means is that Ryker's incision is closed so his recovery can continue on but he is still laying there (unconscious as to what is going on around him) hooked up to all the not so beautiful looking but amazing life saving machines and tubes. Jason and Rachel will not be able to hold him for many days to come. Definitely something they are looking forward to but not pushing until he is ready.

Rachel says that he looks so much better and is starting to look so much more like her baby. They are telling her he is doing "okay" since they have closed him up. The nurses are very frank and are not sugar coating anything for Rachel or Jason. They are going to maintain all his meds without adding or taking away anything for at least the next 24 hours to make sure he says as stable as possible. The next 24 hours are most likely going to pretty rough for him because his heart has to re-adjust to having pressure on it. He has "competed" with the pacemaker a few times and Rachel says that is scary. He needs a lot of positive ENERGY and PRAYERS especially for the next 24 hours.

Jason and Rachel are amazing parents. Jason is at the hospital all day everyday (with the exception of eating and showering) supporting Rachel and Ryker. Rachel sits by Ryker's side as much as she possibly can and rubs his hands and hair. She is currently the talk between the nurses (Per. Dr. Del Nido) that she NEVER leaves his side except to pump and eat which she only does because it helps Ryker. This is not shocking to any of us that know Jason & Rachel, we knew they would be so strong and do whatever it takes to help Ryker.

Rachel's Mom Pam has been with them the last few days and it has definitely made a HUGE difference for Jason and Rachel as well as all of their family far away. We are very thankful to her for going out there.

Your prayers, energy, and amazing contributions towards Jason, Rachel, Ryker, Trett, Jadd, Braylee & Addi really are helping and making this all bearable. They realize how great of a support system they have and know they can make it through anything.

Stay tuned.......

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