Our Miracle - Ryker's Journey with Heterotaxy

Our Miracle - Ryker's Journey with Heterotaxy

Saturday, March 24, 2012

Jason's "breakfast in bed" and Ryker update

First off I want to say how amazing Jason and Rachel are. They have both been so strong and resilient throughout everything in their life and now more than ever. They consistently talk about the miracles and how amazing Ryker is and do not dwell on the downsides of what is going on. To them they are the luckiest parents in the world and it is a miracle to have Ryker and to be exactly where they are (Of course having Trett, Jadd, Braylee and Addi would make it WAY better and easier).

Jason told me this morning as excited as can be that he had breakfast in bed. I was thinking really???? How in the world did Rachel pull off breakfast in bed for him????? Especially because she has been sleeping at the hospital and he has been sleeping at Chris and Lori's. Well he explained that Chris and Lori brought them a air mattress to put on the hospital room floor. Starting the night of Ryker's first surgery they have both been sleeping on that air mattress. His breakfast in bed was courtesy of Jamie and Annie from the care package they send that included chocolate bars which he was referring to as his breakfast. We had a good laugh about this and said who would have thought.

Ryker is blessed to have all of you in his life but most of all blessed to have the two most amazing parents dedicated to doing whatever it takes to support him and spend time with him.

As far as Rykers condition goes, because the PDA was open it has taken a toll on his kidneys. The Dr. is tyring to get the kidney's flushed and get Ryker's body to release a lot of fluid so his kidneys can recover. Other than that concern he is doing good. The Dr. thinks he will be able to close his chest Monday.

Please keep the positive thoughts and prayers coming. Also please say a prayer for Ryker's buddy Pierce who is struggling right now.

Thank you!

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