Update

Posted by Rachel 1/9/12

Ryker has had a really good day today! He has been awake & happy, with his beautiful smiles so much!! We are back down to his normal Milrinone dose too!! :) We did discover something yesterday though that was quite disturbing for me. We found out that while Ryker was on the Recovery Floor somehow, someway his Methadone was cut in HALF!!! I was baffled to find out this news & so was the staff in the CICU. Ryker's wean schedule that had been set up by the Pain Service Team was to wean him by 5% every other day. So now to find out that on the 28th of December his dose was cut in half, is frightening! As of now, nobody knows how this happened & quite frankly I am pretty upset with the Recovery Floor &/or whoever it was that was neglectful enough to do something like this. The Attending here in the CICU has said that he WILL get to the bottom of it. Well- Now at least we can fully understand why he came back to the CICU only a day & a half after this "power wean" He came down with a cold, along with having HORRIBLE withdrawals that no one was even aware of!!! Talk about the perfect storm.....My poor sweet baby boy!! I cannot get over how strong he is to go through all that & still come out ahead! :( I am just heart broken for both Ryker & for my Husband that was here with Ryker those absolutely miserable days, not being able to understand what was wrong with our poor boy. :( The good news of this all (because I always try to look at the positive) is that because it was just now discovered yesterday & Ryker is definitely not having any further withdrawals now that it has been a week & a half later, we are keeping the dose where it is, so his Methadone is now half what it was before, which is fantastic! Just wish he hadn't had to go through so much to get it there! We also had a meeting yesterday with the majority of Ryker's team, there was a lot of discussion on a lot of different things that I will go into more detail about on a later date, but the main thing that was discussed was what needs to be done TO GET RYKER HOME!!!! Happy Dance~Happy Dance!! More details to come :)