Our Miracle - Ryker's Journey with Heterotaxy

Our Miracle - Ryker's Journey with Heterotaxy

Friday, June 29, 2012

Update

Update from Rachel on Facebook - Ryker has been having a really good week! We have increased his feeds to 19 ml. per hour & he is doing well with that! He hasn't had anymore tummy problems (knock on wood) & is putting on tiny amounts of weight. As of now he is almost back up to where he was before he returned to the CICU last week, which was 3.4 kg & right now he is 3.32 so he has just been playing a little catch up. They keep tr...ying to ween his Adavan & because he is on the smallest dose possible the only was to ween it is from every 12hrs to every 24 which is obviously a huge ween, so every time he ends up having horrible withdrawls & then they put it back to where it was :( I think this is playing a big part in him not gaining weight because he ends up burning up all the good calories he has just taken in by crying & sweating. So today I insisted they leave the Adavan alone for a week & let him play catch up & grow!!! Praying for a relaxing & uneventful weekend!! :)
 
Ryker hanging out with his Dad 6/28/12
 
Jason & Rachel have moved into their new apartment and Trett and Jadd are visiting in a few days. YAY YAY YAY I will post in further detail on both events when I receive more information and photos.
 

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