Our Miracle - Ryker's Journey with Heterotaxy

Our Miracle - Ryker's Journey with Heterotaxy

Friday, June 8, 2012

Update....

If you have been wondering what the plan is for Ryker for the next few months Rachel just posted the following: Ryker had a great night in his new room on the recovery floor!! He has seemed so much more content since being here. Its a little more of a "home" environment (at least as close as you can get at the hospital) It's been great to be here!! I don't remember if I have officially said this yet here on FB or not but sadly Ryker will not be going home until after his Glenn Procedure (which is stage 2 of his 3 stage surgery group, so for those of you who have asked- even though he has had 4 surgeries up to this point only 1 of them has been in the "planned procedures" the others like the pacemaker & such have been necessary but unexpected) The normal age for the Glenn is 4-6 months of age & we have been told that Ryker is an "early Glenn candidate" meaning he will be closer to 4 months old, he just needs to grow lots & get nice & strong before he can have that procedure done. So we are here on the recovery floor for a while just working on eating & getting big & fat ;) Then when they feel he is ready he will go in for his Glenn & then go back to the CICU for a while. When we came here to Boston we didn't plan on being inpatient for 4-5 months but we are taking this news as positively as possible knowing that this is what is best for our sweet baby & just excited to finally get a chance to spend time together as a family (instead of 2 people at a time) in his new room with this sweet baby!! :) Sweet little Ryker giving his signature look in the photo. :) 

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