Please please please keep Jason, Rachel, Ryker and the Dr's working on Ryker in your thoughts and prayers. Jason and Rachel just learned that the Dr. has been watching Ryker and monitoring him very closely because he knew there was a sign of distress yesterday. He says that the stress is coming from something blocking the blood flow to his kidneys. They are going to perform a cardiac catheterization and hopefully be able to fix it from there today.
The good news is that they have caught the problem early on. Also great news is that CHB (Children's Hospital Boston) has what I hear one of the worlds best cath Dr's James Lock. He literally invented half of everything cardiologists do in the cath lab. Dr.
Dr. Pedro del Nido is a perfectionist and does not sleep until he can figure out the source of the problem. Jason said that he was in and out of Ryker's room running tests between surgeries and meetings with other patients all day yesterday. Jason said it is pretty incredible to watch how he works with his team and the response and respect he has from his team. One time he would come in wearing a suit, the next wearing his scrubs. It is truly amazing what he does for his patients. He has also been a great support and comfort to Jason and Rachel.
I have had a lot of people ask me about the recovery and when Ryker will be able to go home etc. I have talked to Jason and Rachel and we think it is a good idea to give a little more information so everyone can understand a little more of what they are going through. My information is coming second hand and I am just learning about all of this so I hope it makes sense.
Because Ryker's body is so small and cannot handle the swelling and pressure right after surgery the Dr. did not sew his incision back up. When Jason and Rachel walked in to see Ryker for the first time after surgery not only did they see wires and tubes coming out of all parts of his body, his chest was fully exposed and they could and can still see his heart literally exposed. His incision will not be sewn back together until the Dr. feels he is 100% ready. Ryker is sedated and will be sedated for many more days to possibly weeks. Dr. Pedro del Nido is going to be taking the recovery process VERY VERY VERY slow with Ryker because his body is so small and his heart condition so complex. That includes waking his body up from sedation. It will be a very slow process. He will slowly wean him off all the medication his body is using to function now.
Thank you for all the prayers and support.
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